Heart to Heart with Anna
Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community.
With unwavering dedication, our heartfelt conversations bring to light the stories that need to be heard. Gain invaluable insights, expert advice, and a sense of empowerment as we explore the multifaceted world of CHD. Our mission is to uplift, educate, and enrich the lives of every member of this incredible community.
Embark on a transformative listening experience where compassion and understanding thrive. Discover the resilience and unwavering spirit that resides within each person touched by CHD. Together, let's build a community where support and knowledge flourish, bringing hope to the forefront.
Tune in to 'Heart to Heart with Anna' and embark on a remarkable journey that will leave you inspired, enlightened, and connected to the beating heart of the CHD community.
Heart to Heart with Anna
Long Q-T Syndrome, Genetics, and Pregnancy
How can a mother, grandmother, and great-grandmother -- determine how to help families like her own? Why would a woman make it her mission to help others with an invisible illness? What can we learn from such a woman?
Jackie Renfrow thought her family had a history of epilepsy. After losing her son Jimmy in 2000 and her daughter Crissy in 2002, she was desperate to find a way to save her two baby granddaughters. It wasn't until her own mother started fainting and having irregular heartbeats that she finally got answers. Emergency doctors performed an electrocardiogram (ECG) and promptly diagnosed her with Long Q-T syndrome. Jackie and her granddaughters Alexis and Jessica also had an ECG and they were diagnosed with the syndrome as well. Jackie has since started a chapter of the Sudden Cardiac Arrest Association in Indianapolis. She works with scientists, doctors, parents, and others to promote awareness of sudden cardiac arrest and access to defibrillation and treatment. In honor of her children and grandchildren, she works to spread awareness of Long Q-T syndrome in order to help other families prevent the loss of their loved ones.
In this episode, Jackie talks with Anna about what she has learned in living with Long Q-T Syndrome and seeing it affect generations of her family.
Link mentioned in this episode:
Jackie's first appearance on "Heart to Heart with Anna" -- https://www.buzzsprout.com/62761/398945-seizing-the-day-with-jackie-renfrow
Jackie's appearances on "Heart to Heart with Michael"
Losing Loved Ones to a Misdiagnosis: https://www.buzzsprout.com/123208/1101869
Living with Loss after Loss: https://www.buzzsprout.com/123208/1133858
SADS Foundation: www.sads.org
Sudden Cardiac Arrest Association: https://suddencardiacarrest.org/
Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817
Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:
Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2
MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw
Instagram: https://www.instagram.com/hearttoheartwithanna/
Website: https://www.hug-podcastnetwork.com/
Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website